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ANITA LEVY MUSIC

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Happy Papa's Day to the best Papa in the whole wide world!! Oh, I'm no good with my words but just look at all of the joy I have when I'm with my father. I got to spend all of last year with him and we made so many precious memories - just imagine what my life has been like!! I am overflowing with so much love, laughter and joy because of him. A true example of a good man. I hope the father of my children will be just like him. I don't think many daughters my age build snowmen with their fathers 😂☃. I love my papa ❤️#パパそっくり #父の日 #パパの日 #meupai

Crazy textures going on underneath my clothes. Different skin everyday. Went for a walk today and caught up with a friend. I saw the world again! I haven't been able to cope seeing people until now so this is all very good! Sleep please!! 🙏

I'm finding relief and peace as I soak in the bath where I'm able to move my body as much as I want before my skin dries up again. I continue to fight the enemy unaided (steroids) and the specialist who is helping me reminds me " It will take time, patience, determination and courage. Gifts that you have already well and truly demonstrated". In the meantime we look at ways to gradually restore my immune status - topical and systemic - and hopefully shorten the sufferance period and reduce the rate of relapses.

I'll be going back home to Japan at the end of the month then to Darwin then coming back to Melbourne, hopefully for a fresh new start as this time didn't go so well. Looking forward to being back home with Mum and Dad and going to my gardens. Then exploring Darwin where my brother, sister- in-law and little Molly-Faith are.

Just a leeeedle bit ouchie!! Thank you so much everyone for your messages, prayers, love and support. Each episode has been different and I feel like this three week episode so far is an express!! (Well I'd hope so as its my fifth episode). Soooo thankful the weeping and attacks have stopped since yesterday. I just don't know how I got through some of those nights. 😰 I'm healing very fast, but sleep would be nice. Just a bit red raw right now so it's very painful to move (also feeling a bit ill and weak still) but as long as I don't have those attacks and weeping I'm a happy happy HAAAAAPY girl! 🤗 This stage is a piece of cake to get through... Well, just a bit ouchie! Here is my skin now vs. how it will be very soon! It's pretty crazy how many textures my skin has gone through even within a few hours. My skin ❤️ #redskinsyndrome #topicalsteroidwithdrawal #healingeczema

My dear friend cheered me up with some good news and bought me tickets to see KIMBRA in Melbourne as she just happens to be doing a show on my Bday!!! I've already seen her in Japan at Billboard Live Tokyo and it was an amazing show I definitely want to see her again. It was before her latest album came out and she performed this song that really moved me it was incredible... I waited for months to find out what that song was and finally I found out it was 'Top of the World'. My favourite song of hers!!! Can't wait to be healthy and to dress up (maybe in my polka dots again) and see Kimbra! It will be a different vibe compared to the Japan show, I'm excited! (This picture I had no sleep for weeks getting out of my last episode so I was struggling a bit...) But I'll have my full health when I see her next and I'll be dancing! 💃🏼

Here's a video to help explain what I'm going through as you might be wondering, why is it taking years for me to be cured/why can't coconut oil and moisturiser help the itch and rash. Well it's an addiction. What is the cure? Total cessation, and it's just like any other addiction, how do you cure the morphine addict? Cold turkey him. The difference between eczema people is they itch, get a rash but the steroid addicted people burn and are on fire. "As they go through the hell, we hold their hand through it and finally there's a break." Dr Rapaport explains TSW if you'd like to understand more of what I'm going through. Link in bio.

This photo is from a few months ago. Right now I am going through one of the hardest stages of TSW (my 5th episode) and that is the weeping skin. The last time it got to this stage where it spread to my whole body (like how it's doing now) I wasn't able to endure and had to get cortisone injected in me. I couldn't do it. I am a very, very strong woman but I'm not sure I can get through. Oh the things I'd do to get that injected in me now, the relief. The problem is I get stuck in the cycle as I've become steroid dependent. So once the steroids stop I rebound. So I have to get through this somehow. If it were just a little bit of ooze where my clothes stick to me or I am literally stuck to the bed that's fine! Unpleasant, but I could do that. But what I can't cope with are the attacks that come with it as my body screams for that drug. As my skin oozes there is a burning itch bone deep that is so intense it makes you want to rip your skin apart, it is actually torture. Over the past four hours as the oozing has spread I've had about one minute of peace. It helps that I share as it's too much suffering for me to keep to myself alone in the dark. I wish it was as easy as quitting smoking or something... (Yes I know that's very hard.......) I appreciate everyone's advice but I'd rather just feel that I can share and have love and understanding rather than suggestions to drink green smoothies and meditate. I'm very calm I've had to stop work since two weeks ago so I am not stressed other than trying to find relief somehow through this torture I'm going through. Thank you for letting me share and for your support and prayers and love. Let's hope I can do this and if you're going through anything difficult in your life right now let's hope you are also strong enough to get through. If you can do it, so can I!
#tsw sufferers, how do you make the weeping stop? And what are these attacks? I'm thinking wet wrap therapy could somehow bring relief but here in Melbourne it seems at hospitals it's just for kids...? It feels like I need a miracle to get through this... How do you do this?
#tswwarrior #topicalsteroidwithdrawal

Beauty facts: The loose design of the collar is to give a glimpse of the neck, (considered the most beautiful, sensual part of the kimono-wearing lady)
2nd photo: 'Ohaguro', the ancient Japanese custom of dyeing one's teeth black. This was considered beautiful. I don't have black teeth but I do have crooked teeth... Believe it or not, unlike the West, having crooked teeth is considered 'kawaii' or cute in Japan. I do love my crooked teeth! 🤗😁✌️🙊

What an amazing man my brother is! I needed someone to care for me as I wasn't able to move my body with all of the weeping skin. He came to cook for me (my favourite pasta), clean, do laundry, calm me down when I was having attacks and most importantly just be by my side through some extremely difficult days. Fortunately the weeping has finally stopped and I'll be seeing a specialist this week to find out more answers. Thank you Daniel you are just amazing, I love you! The doggie misses you too! ❤️ we both looked at him like this when he left.

So a friend of mine has a theremin.... So I asked if I could have a little play on it! My first time so don't judge my 'Mary had a little lamb' it's a bit tricky. I kind of wanted a theremin on one song of mine but I won't be playing it that's for sure. When you fail at theremin just use your own voice hehe or play it and auto tune I was told today 😅 😂#wingardiumleviosa #moogtheremin

Oh my... Gluten free, dairy free AND egg free vanilla slice... I didn't know you could exist!!! And you're scrumptious too!!! 😁✌️#happygirl #glutenfree4u

Here's a different type of kimono. The Jūnihitoe - the Japanese 12 layered robe that first appeared in the Heian period, worn only by court ladies. 12 single layered unlined silk robes worn on top of each other, each a different colour. Each layer has seasonal elements and beautiful designs but you can only see the border of these exquisite textiles. They can weigh up to about 20kg. When I took it off my legs were shaking it was so heavy!

Wish I could have delivered flowers to my mum today, or go out for a nice breakfast but she's in Japan. I'll be seeing her soon though! I thought of visiting my friend today who has looked out for me and prayed for me over the years. She hasn't seen her son in many years. He is overseas so I thought I'd deliver her some flowers! She was telling me stories about the many joys of being a mother, but wow so many many challenges! It made me think...I guess I haven't been the easiest work for my mother over the years... But no matter what, as I make my decisions and learn many hard lessons and continue to grow, my mother has always been there for me, always will be and loves me so so much. She has been there for me the years I was sick, she was there grieving with me. Always been there when I needed wisdom, advice and of course a very good laugh. It must be quite a journey being a mother, and I hope to experience that journey one day! I am very blessed to have an incredible role model. Happy Mother's Day to you mothers, what a special journey it must be! ❤️

Happy Mother's Day to this beautiful amazing woman! It's always a fun adventure with you, I can't wait to see you in July for some new adventures!! Love you Mama!

Surprise catch up with my brother is the best!!! 😍

Guess who I'll be seeing in July...! 😍

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